A caregiver with an elderly loved one

Caregivers United for Equity

New York's Caregivers Deserve Better

3.6 million caregivers. Zero compensation. It's time to change that.

Caregivers United for Equity is driving an overdue conversation about the recognition, compensation, and rights that New York's family caregivers deserve.

Caregivers Matter

Every day, 3.6 million New Yorkers provide unpaid care to aging parents, disabled spouses, and children with special needs — often sacrificing their own careers, health, and financial security.

These caregivers are the invisible backbone of our healthcare system. They save New York billions of dollars annually, yet receive no compensation, no benefits, and no legal recognition.

Caregivers United for Equity exists to change that. We believe that caring for a loved one is work — and work deserves to be paid.

Diverse multigenerational family and caregivers

Empowering NY Caregivers

The Problem

A System That Fails Caregivers

Current Medicaid rules, outdated trust laws, and gaps in federal leave policy leave family caregivers without compensation or protection. The system was not designed with caregivers in mind — and it shows.

Our Solution

Policy That Puts Caregivers First

We are advocating for concrete legislative changes: Medicaid caregiver compensation, irrevocable trust reform, expanded healthcare proxy rights, and a New York State caregiver tax credit.

Caregiver and patient in conversation at home

Your Voice Matters to Us

Your Story Can Change Policy

Lawmakers need to hear from real caregivers. Your experience — the sacrifices, the challenges, the moments of love — is the most powerful tool we have to drive legislative change in Albany.

Click Here to Tell Us Your Story

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